I wish to be...

... A Jedi during Star Wars Weekend!

We found out last May that Trev will be receiving a wish through Make A Wish. It has been very hard to accept the fact that he even qualifies. He has been doing so well right now that we tend to "forget" all that he has gone through. I have always had it in my head that it is for kids with terminal illnesses. After talking with the wish grantors that is what it USE to be when it first started. Now they grant wishes for kids living with life threatening medical conditions which Trev does have. I found out that most kids who receive wishes go on to live healthy lives.

We met with our wonderful wish grantors back in June. They brought a small gift for each kiddo which was wonderful. Scott and I filled out a ton of paperwork while one wish grantor spoke with Trevor. They asked him all kinds of things from his favorite color, food, restaurant, sports. Trev's official wish is to be a Jedi during Star Wars Weekend. He is just mildly obsessed with Star Wars :) His back up wish was to go to Lego land.

Right before Trev's birthday we found out his wish was granted. What a wonderful birthday present! Now we sit and wait for dates for Star Wars Weekend to be announced... Finally, a couple days before Christmas dates were announced! After the New Year we were once again contacted by MAW to figure out some dates we may want to go. Now we wait again to hear when we will be going :)

It has taken us awhile to accept the fact that he qualifies. We are now starting to get excited and we are very honored that Trev is being blessed by such a wonderful organization! Between Kara's surgeries and Trev's extra cardiac tests it really has become a blessing and gives our whole family something to look forward to besides hospital visits and surgeries.

Cardiology

Trev had his cardiology appointment a couple days before Christmas. I was brave and took the girls with me too... What was I thinking!?! Kara was only a few days out of surgery and still not feeling that great. This is the first time the girls have come. It was interesting to say the least!

I was hoping to get in have the tests done and hear nothing has changed... After the echo, EKG and his cardiologist looking him over he had a funny look when he looked at me and then looked back at Trev. He asked Trev how old he was and when his birthday was... He wants to begin stress tests now! We were hoping to wait until Trev was 10 to start this! He is only 7! He said that his right ventricle had grown larger and it is time to start the tests to see how is heart is dealing with the stress of exercise. He wants the tests completed within the next two months. Depending on the outcome of the tests will determine if Trev gets a valve and conduit this year. (He currently does not have a pulmonary valve or conduit. They took those out when he was a baby.)

His cardiologist also wants him practicing on a bike so Trev will be comfortable riding a bike for his stress test. Since we do not have one we were able to rent one for a month. Trev can barely reach the pedals :) He is able to ride it for about 10 minutes before stopping. Hopefully that is not putting stress on his heart! We have the test scheduled for the end of January. In February he will go in for a cardiac MRI dye test. For this one he will be under general anesthesia.  Between him and Kara will be seeing the inside walls of Children's a lot these next couple of months!

Trev has had some anxiety about these tests. We are trying to talk him through it and showing him pictures online and talking to people that have had these done. On a good note he is in the 75% for height! He is growing like a weed... I think that is a good sign :)