February 27, 2013

The results are in...

Trev's stress test came back excellent as well as his CPAP. Yay!! He has great exercise tolerance!! His MRI came back showing his right ventricle has enlarged but we knew that already. There is good blood flow from his heart to his lungs without the pulmonary valve so we can wait on surgery at least another couple years as long as nothing changes! It has been a LONG 3 weeks waiting for results! We go back in for a regular cardiology checkup in a few months and hopefully it will be a "routine" one instead all these crazy appointments he had this last time!

Now to keep him active in swimming and soccer to keep his heart nice and strong. Praying he can make it until 12 or 13 before he needs anymore intervention. We are SO excited that everything turned out well! Thanks for the prayers everyone!

February 6, 2013

MRI




Trev had his cardiac MRI today. He needed to be under general anesthesia because the test is 90 minutes long and he has to be completely still. They did the dye contrast to check the function of his heart. Depending on the outcome of this test he may have open heart surgery this year.

We got an early start and left at 9:30am. Good thing we left so early... There was no parking!! We finally found a spot to park and it was a compact spot of course... I had the truck which is not so compact :) After about 15 minutes I finally got the truck to fit in that small space! We got checked in and had about 15 minutes before our appt. About 12:30 Trev was finally prepped and ready to go to sleep in a big machine! He was pretty excited about the whole thing... He has been telling his friends for days all about it :)

I got to go back and watch as he fell asleep to root beer flavored gas. I have never watched him fall asleep before as cardiac kids can not have their parents in the OR with them. It was hard to watch him.

After 90 minutes he was wheeled back to the room and was sleeping soundly. It took him about 30 minutes to stir. Another 30-40 minutes to wake up. He was really funny waking up :) He tried eating his popsicle and kept missing... He was a happy camper though as he got popsicles, juice and pop in recovery.

After he got his wheelchair we went to the playroom and he played XBox for about 20 minutes then we headed to the cafeteria and he got something to eat. We had another fun day at Childrens. It was about 5:30 when we got home. Next time he misses school though hopefully it will be something a little more enjoyable :)

Again he was a ROCK STAR!!

February 4, 2013

Stress Test



Trev went in for his stress test last week. He was a ROCK STAR!!! We started the day early and picked up Grandpa on the way. Trev ate a light breakfast and snack so he would be ready for his big test! This was a first so we did not know what to expect. Overall it went pretty smoothly.

When we got to Children's we headed for cardiology and were ready to go. Trev was measured and weighed. As soon as he was measured they said we might have a problem. He was 1.5" shorter than needed to be on the bike. The nurse decided to have him sit on the bike to see if his legs were long enough. Luckily the boy has long legs!!

He had the EKG leads put on then went to the room for the stress test. He did some breathing exercises to get some base line tests. He then got on the bike with his EKG leads, mask, head band and blood pressure cuff. He was a trooper throughout the whole thing!

He ended up making it 7 minutes on the bike with a lot of resistance. Great Job Trevor!!

When I grow up....

If you asked this question a few months ago the answer was: A builder: Trevor, a doctor who works on Trevor's heart: Kara and a teacher: Allie.

Well A LOT has changed in those past few months. Trev still wants to build everything from houses and hospitals and schools and the tallest building in the world. The girls however have different plans.

The girls have been obsessed with Ariel lately. So that is where their new dream has grown. I was informed when they grow up they are turning into Ariel and Daddy will turn into Prince Eric and they are going to marry Prince Eric! Oh yeah, first I need to dye their hair red so they can turn into Ariel. I wonder what they will want to be next week!?!