January 8, 2015

It is that time again for Kara and Trevor's checkups!!

Today both Kara and Trevor are having checkups to see how their ear and heart are doing respectively. Kara has been battling cholesteatomas  since age 4. She has had 2 surgeries to remove growths in her ear as well as completely restructure her ear drum. Because of this she has some hearing loss. But that doesn't stop her at all!

She is SO excited about the possibility of another surgery that she has come up with a parody to Jason French's 'You Just Want My Money'. She has been going around singing "I just want surgery, surgery, surgery" Silly girl! Really, how can you blame her though when she is doted on 24/7, gets movies and popsicles whenever she wants and gets to sleep downstairs and stay up all night?!?!

We get to Children's Hospital... After both kids have ate their weight in food... Because by 10am of course they are STARVING! Never mind they usually do not eat lunch until 11:30. For some reason driving in a car makes one very hungry....

Kara's appt is first. We get into the room and she gets measured and weighed. Of course lots of pics are being taken... Not like they don't have any of standing on a scale from previous appts... The doc takes a look in her ear and is not satisfied with what he sees... Please NO MORE CHOLESTEATOMAS! I am SO done with this. There isn't much they can do since her ear is so infected. So they send us off with meds and to come back in 8weeks. Now I am to the point that I don't know if I should laugh or cry... I choose laughing and the kids and I do act a little silly at the hospital ;)




We have a couple hours until Trevor's appt so we head to the Make-A-Wish office to drop off our checks we earned through having a fundraiser party. It was a small way to give back for all that MAW did for Trevor and our family. We raised over $400 so I was very happy about that!

It was an adventure as it was located downtown. Parking was a NIGHTMARE! We circled the same 4 blocks maybe twenty times in an hour... Because driving downtown is a big fat NO NO! Especially mid day. But after a few frustrations and a few laughs and LOTS of singing we found a spot to park! We got a tour of the office and handed over our donation. It was a lot of fun. Now time to get to Trevor's appt. The one I really was dreading.

We finally get back to Children's (Thankfully they have valet parking as we were really pushing it for time). Trev is excited about the fact he has another open heart surgery coming up... Crazy kid ;) Again, LOTS of pics! First, he gives the technician that will be doing his echo a couple new movies, The Lego movie and Smurfs. He was so proud of himself that he bought them with his own money he received for Christmas.  This kid has such a loving heart :)

He gets ready for his echo and watches the Lego movie during the 30 minute test. Then it is off to get his EKG. He picks out Sponge Bob stickers for where the EKG wires go. Afterward he is a sticky gooey mess... Good thing it is bath night tonight!

The cardiologist comes in and I can barely stand it how quiet he is. I just want to know if my baby is having open heart surgery now or possibly next year! After what seems like forever he tells me that Trevor is doing pretty good. His heart is enlarging at the same rate his body is growing so right now he is stable. His heart is still slightly enlarged but not enough to do anything about yet. Currently he does not have a pulmonary valve or a conduit. That will be his next surgery. As of now they are thinking around age 11. Of course that can change at anytime. Great news Trev does not need surgery yet!!! I didn't think it would be Kara I would have to worry about surgery this year... I tell you, these kids sure do keep you on your toes. Kara's twin, Allie is still not very pleased she has not had surgery yet...

Here he is all hooked up!!!

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