Trevor had his cardiology appointment today. When we arrived at the clinic they told us our appointment had been canceled! With all the emotions flowing through me gearing up for todays appointment, I lost it and the flood gates opened... I was able to gain control, and they worked us in.
Trevor did great during the echo and EKG. They took his sats, and for the first time in a long time they were in the low 90's! He still has a residual ASD so it looks like we will be headed to Children's in the next couple of months to have that closed.
As for his next surgery, a valve replacement, the Dr. is hopeful that he may never need OHS again! They are coming up with so many great things via technology that they may be able to replace it via the cath! That is such wonderful news!! The Dr. also said he would like Trevor to be at least twice as big as he is now when they perform the valve replacement.
We were also told today that Trevor needs genetic testing for Noonan's syndrome. Not what I wanted to hear. Developmentally he is doing great though. The Dr. was worried because of his large head and small face, although I explained that Scott's whole side of the family has large heads :) We will be doing the genetic testing and the Cath at the same time.
We asked about sports for Trevor. Again, the Dr. is hopeful that Trevor will be able to play competitive sports as he gets older. Overall, such wonderful news! Thanks everyone for your prayers!
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