Trev has started to make his own epic fail videos... His goal is to be a Vine/YouTube sensation... This kid of mine is something else :) He is funny and talented enough that one day he can do it! I hope he always keeps this crazy, fun, demeanor about him.
January 31, 2015
Trevor's Vine debut :)
January 23, 2015
Trevor is going to heart camp... In California!?!
Now that Trevor is getting older he is asking more questions about his heart. (He is 9 now). I thought it would be a great idea for him to connect with other kiddos like himself. Of course the closest camp for kids with congenital heart defects is in California!!! SO, it looks like we are going to California this summer!!! BUT that also means that we need to raise money for this to happen. I talked with Trev about the importance of meeting other kiddos like himself and at the same time it would mean more to him if he helped earn it. Of course my sweet, loving kiddo agreed with me right away. So, as of this weekend he is being hired out to do housework and yardwork for family and friends. He has been so excited to earn money for camp! I'm nervous and excited about him going to camp. I love that there is medical staff readily available and all the kiddos are going through something similar. I LOVED camp as a kid and still remember all the crazy goofy things we did. How they ever let me be a counselor at 16 I'll never understand ;) But it was truly a magical time for me as a camper and counselor. I hope Trev has the same experience. And here is to Trev to raising money to go to camp this year!
January 10, 2015
January 8, 2015
It is that time again for Kara and Trevor's checkups!!
Today both Kara and Trevor are having checkups to see how their ear and heart are doing respectively. Kara has been battling cholesteatomas since age 4. She has had 2 surgeries to remove growths in her ear as well as completely restructure her ear drum. Because of this she has some hearing loss. But that doesn't stop her at all!
She is SO excited about the possibility of another surgery that she has come up with a parody to Jason French's 'You Just Want My Money'. She has been going around singing "I just want surgery, surgery, surgery" Silly girl! Really, how can you blame her though when she is doted on 24/7, gets movies and popsicles whenever she wants and gets to sleep downstairs and stay up all night?!?!
We get to Children's Hospital... After both kids have ate their weight in food... Because by 10am of course they are STARVING! Never mind they usually do not eat lunch until 11:30. For some reason driving in a car makes one very hungry....
Kara's appt is first. We get into the room and she gets measured and weighed. Of course lots of pics are being taken... Not like they don't have any of standing on a scale from previous appts... The doc takes a look in her ear and is not satisfied with what he sees... Please NO MORE CHOLESTEATOMAS! I am SO done with this. There isn't much they can do since her ear is so infected. So they send us off with meds and to come back in 8weeks. Now I am to the point that I don't know if I should laugh or cry... I choose laughing and the kids and I do act a little silly at the hospital ;)
We have a couple hours until Trevor's appt so we head to the Make-A-Wish office to drop off our checks we earned through having a fundraiser party. It was a small way to give back for all that MAW did for Trevor and our family. We raised over $400 so I was very happy about that!
It was an adventure as it was located downtown. Parking was a NIGHTMARE! We circled the same 4 blocks maybe twenty times in an hour... Because driving downtown is a big fat NO NO! Especially mid day. But after a few frustrations and a few laughs and LOTS of singing we found a spot to park! We got a tour of the office and handed over our donation. It was a lot of fun. Now time to get to Trevor's appt. The one I really was dreading.
We finally get back to Children's (Thankfully they have valet parking as we were really pushing it for time). Trev is excited about the fact he has another open heart surgery coming up... Crazy kid ;) Again, LOTS of pics! First, he gives the technician that will be doing his echo a couple new movies, The Lego movie and Smurfs. He was so proud of himself that he bought them with his own money he received for Christmas. This kid has such a loving heart :)
He gets ready for his echo and watches the Lego movie during the 30 minute test. Then it is off to get his EKG. He picks out Sponge Bob stickers for where the EKG wires go. Afterward he is a sticky gooey mess... Good thing it is bath night tonight!
The cardiologist comes in and I can barely stand it how quiet he is. I just want to know if my baby is having open heart surgery now or possibly next year! After what seems like forever he tells me that Trevor is doing pretty good. His heart is enlarging at the same rate his body is growing so right now he is stable. His heart is still slightly enlarged but not enough to do anything about yet. Currently he does not have a pulmonary valve or a conduit. That will be his next surgery. As of now they are thinking around age 11. Of course that can change at anytime. Great news Trev does not need surgery yet!!! I didn't think it would be Kara I would have to worry about surgery this year... I tell you, these kids sure do keep you on your toes. Kara's twin, Allie is still not very pleased she has not had surgery yet...
Here he is all hooked up!!!
She is SO excited about the possibility of another surgery that she has come up with a parody to Jason French's 'You Just Want My Money'. She has been going around singing "I just want surgery, surgery, surgery" Silly girl! Really, how can you blame her though when she is doted on 24/7, gets movies and popsicles whenever she wants and gets to sleep downstairs and stay up all night?!?!
We get to Children's Hospital... After both kids have ate their weight in food... Because by 10am of course they are STARVING! Never mind they usually do not eat lunch until 11:30. For some reason driving in a car makes one very hungry....
Kara's appt is first. We get into the room and she gets measured and weighed. Of course lots of pics are being taken... Not like they don't have any of standing on a scale from previous appts... The doc takes a look in her ear and is not satisfied with what he sees... Please NO MORE CHOLESTEATOMAS! I am SO done with this. There isn't much they can do since her ear is so infected. So they send us off with meds and to come back in 8weeks. Now I am to the point that I don't know if I should laugh or cry... I choose laughing and the kids and I do act a little silly at the hospital ;)
It was an adventure as it was located downtown. Parking was a NIGHTMARE! We circled the same 4 blocks maybe twenty times in an hour... Because driving downtown is a big fat NO NO! Especially mid day. But after a few frustrations and a few laughs and LOTS of singing we found a spot to park! We got a tour of the office and handed over our donation. It was a lot of fun. Now time to get to Trevor's appt. The one I really was dreading.
We finally get back to Children's (Thankfully they have valet parking as we were really pushing it for time). Trev is excited about the fact he has another open heart surgery coming up... Crazy kid ;) Again, LOTS of pics! First, he gives the technician that will be doing his echo a couple new movies, The Lego movie and Smurfs. He was so proud of himself that he bought them with his own money he received for Christmas. This kid has such a loving heart :)
He gets ready for his echo and watches the Lego movie during the 30 minute test. Then it is off to get his EKG. He picks out Sponge Bob stickers for where the EKG wires go. Afterward he is a sticky gooey mess... Good thing it is bath night tonight!
The cardiologist comes in and I can barely stand it how quiet he is. I just want to know if my baby is having open heart surgery now or possibly next year! After what seems like forever he tells me that Trevor is doing pretty good. His heart is enlarging at the same rate his body is growing so right now he is stable. His heart is still slightly enlarged but not enough to do anything about yet. Currently he does not have a pulmonary valve or a conduit. That will be his next surgery. As of now they are thinking around age 11. Of course that can change at anytime. Great news Trev does not need surgery yet!!! I didn't think it would be Kara I would have to worry about surgery this year... I tell you, these kids sure do keep you on your toes. Kara's twin, Allie is still not very pleased she has not had surgery yet...
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