June 23, 2010

What will they think of next!?!

The other day I was folding laundry in my room. Trevor and the girls were safely in the house. All the gates in place and doors closed. Or so I thought. After about 5 minutes of folding clothes I couldn't here the girls. I went looking for them and they were no where to be found. I glanced down the hall and seen the doors were shut. I asked Trevor where they were, he didn't know either.

I start panicking as I open all the doors and looking in all the hiding areas. The last place I look is the bathroom. There they are super quiet with the toilet full and the garbage empty. As soon as they see me they start laughing and saying "water, water". They were so proud of themselves. They of course just couldn't empty the garbage can they had to start on the drawers too.

I had to fish out old diapers (at least they were only wet ones to begin with), loofahs, lots and lots of toilet paper. Trevor's bath crayons, and hand towels. The floor mat and the towel were soaked with toilet water. It was fun times cleaning that mess up :)

I keep thinking to myself, I was only out of there sight 5 minutes... There brother never did anything like this! What will they think of next?

June 17, 2010

My little monkeys

While I was putting laundry away, Kara decided to explore a little. As I went into the kitchen I was startled by the fact that Kara was sitting in her high chair. It was just about lunch time, but I could have sworn that I did not put her there! I asked Trevor if he put her in there, although I know that would have been next to impossible.

Trevor said " No, she climbed onto the table and over it then climbed into her highchair." She had the biggest grin on her face when I seen her in there. She was very proud of herself :) Now if I only had a hidden camera so I could catch all that cuteness in action...

Later in the afternoon I caught Kara trying to climb the table again, so this time I grabbed my camera and tried to hide while filming her. I did catch her in the act as well as Allie climbing the table and trying to get into her highchair.

Later, while eating dinner I cut up apples into straw like pieces. Big mistake. Allie decided it would be funny to put it up her nose. She too, had a huge grin on her face and was so proud of herself :)

2 down, 2 to go!

I can't believe Trev's ASD closure was 2 weeks ago. I don't even remember being in the hospital! Last week Trevor had some leg pain at the cath sight. After calling the on call cardiologist and talking with him he thought Trevor was just overdoing it. I could have told you that :) He is finally getting in a groove of watching TV, playing video games and doing art. He still likes to run and jump of course. He is having a very difficult time falling asleep as he expends no energy during the day. Hopefully when we go back to cardiology in a couple weeks they will tell us that everything is looking great and the device is where it is suppose to be and Trevor can go back to doing anything he wants, within reason of course :)

Allie and Kara are talking up a storm. They have about 50 words, although they do not put two words together yet. They love reading, shoes, tutu's, dirt, rocks and cars. Kara has started climbing the table. Whenever I see her on it she is spinning on all fours. I have tried to take video as it is cute, but I do not want her on the table.

Thank you to everyone who has prayed for Trevor and brought him gifts and blessed us with dinner!

June 11, 2010

One week down, Three to go!

Trevor is now into his second week of recovery. Overall he is doing great! It has been a challenge though to keep him from running, jumping and doing everything he is not suppose to do right now. July 1st is not coming fast enough... I sure hope the Dr. will lift his restrictions then. Trevor has been having difficulty falling asleep as he is not expending any energy during the day. So now instead of being asleep around 8, it is more like 11. He stays in bed wide awake just talking to himself and reading books. Hopefully these next 3 weeks go a little smoother.

Allie and I went to a Drs. appointment on Wednesday. It was beautiful at our house so she wore her sandals and a short sleeve shirt and no jacket. During the appointment you could hear the rain pounding on the roof! I thought they had metal roofs and it was hailing... No! That was the rain we heard! Marysville got over 1.5" of rain in one hour! I have never seen it come down so hard before.

We tried to wait it out in the waiting area, as there was thunder and lightening too. The parking lot was flooded and there was about 3" of standing water. The water was slightly above the gray on the wheels. It was crazy! My shoes were completely immersed in water! And of course Allie was getting cold as she was dressed in her summer outfit. The streets were even flooded. Once we got home it was blue skies here. Somehow we missed all that rain... Thank goodness for that!

Kara is now sick. Fever and cough with a rough voice. Although she still loves to play and dance around. So that is good :) Both girls are expanding their vocabulary everyday. It is amazing what they can do! They truly are not babies anymore, even though we still call them our babes.

June 7, 2010

Recovery update

Trevor is full of energy these days! I think they must have replaced his batteries while they were in there :) We are trying our best to keep him calm with no running, jumping, climbing but it is proving to be a challenge. At least the sun is in hiding so we don't have to worry about parks and bike rides at the moment.

Trevor has enjoyed the cards that his friends have been making him. He also enjoys company but for now it is proving to be a little much for him. It gets him rather excited, so we are holding back on having more of his friends for the next few days as he heals.

He is enjoying playing hospital with us. Kara and Allie are the nurses, while mommy and daddy are the Drs. and Trevor is the patient. He remembers every detail from the hospital and we have to be sure to include all of them when we play. He even wears his red socks he got from the hospital. Although they have now gotten a hole in them from so much washing, I'll have to find a pair somewhere :)

The girls have been enjoying lots of quality time with mommy or daddy by themselves. As it has been easier for Trevor to do quiet time activities if he is with just one of us and the other is out with the babes. They have been so worn out going so many places that they have been taking great naps and falling asleep fairly quickly at night.

June 5, 2010

Reinactment

Yesterday while doing play dough Trevor wanted to build a hospital room complete with a bed with wheels. We built Trevor in his bed with red socks, green hospital gown, an IV, bandages and all the wires he was hooked up to. We also put a popsicle in one hand to represent the many he had :) He had his tray with pudding, coloring books, and juice. His moose was also in bed with him :)

We also made a TV, the chairs that folded into beds, mommy, daddy and the nurses. He had so much fun at the hospital he wants to do it again. Hopefully not for many more years! I'm glad he had such a great experience though.

Trevor is pink!!

I still can't get over how pink Trevor looks! I think I can get use to this new look! He seems to be getting a little pinker each day since his ASD closure. The mornings have still been cold so I expect to see him a little on the bluish side. But now that is Oxygen levels are now at a heart healthy persons level the blueish undertone is gone. Pink is my new favorite color for Trevor!

June 4, 2010

Trevor's trip to the ER

Trevor and I were watching a movie when all of sudden he said his chest hurt a little. I asked him to show me where. It was right in the middle of his chest. So of course I got scared and called the Heart Center right away. They told us to come in right away. Either to Children's or the ER, they would call me back with where to go. Since we are so far away from Children's I left immediately with Trevor. Scott stayed home with the girls while Trevor and I started driving to Seattle. The hospital called back and said to go to the ER as they could not squeeze us in for an appt. We got to the hospital around 2. Trevor had his moose and 3 other beanie babies with him plus his leapster :)

They were waiting for Trevor when we got in. Trev was still complaining of chest pain. They did a battery of tests including EKG, echo, chest x-ray. Trevor was a trooper during the whole experience until it came time for the x-ray. He wanted nothing to do with it. He started to freak out. There were four of us holding him down. But we eventually got what we needed. His heart looks great! The device is still where it needs to be which is great. The Doctors said the pain could be from anesthesia where the esophagus had a spasm. Or from his aspirin it could have made his tummy upset. Also, he could have anxiety from his procedure which could cause pain.

Everything turned out great and we finally got home around 7:30. We still do not know the exact cause. But we know it is not his heart or lungs, so that is great news! We are to go right back if he experiences any chest pain again as that is a sign that the device has been dislodged. Thank you everyone for your continued prayers during Trevor's recovery.

How do you keep the energizer bunny down?

Trevor hasn't even been home for 24 hours and already he is bouncing off the walls. We were told to have him take it easy for the next few days. We try to explain it to him so we don't scare him too much. He ends up crying, then I end up crying. This is going to be a very long month. I think he got maxed out on movies watching 8 of them in the hospital! He doesn't want to color, do artwork, watch tv or movies. All he wants to do is go outside and play and run around. I wish this part of recovery were still in the hospital. Then I wouldn't worry as much. Trevor is normally a very active kid. This is going to be tough on all of us. Any ideas on how to keep him down will be appreciated!

June 3, 2010

What kind of face are you?

Last night one of the nurses asked Trevor how he was feeling. She showed him a chart with happy and sad faces. He studied it and when he didn't answer she asked him if he was a sad face or happy face? He said happy face. She asked which kind of happy face, this one (kinda happy) or this one (really happy)? He pointed to the really happy face as he was laying in bed eating a popsicle and watching a movie.

Recovery

Trevor got a room around noon. The cardiac floor was full so he went to the general surgery floor. When we first saw him he was a little groggy but in good spirits. He got to ride in his bed to his room. He thought that was great! He asked for his first of 8 popsicles right away. He had to try every flavor they had :) He watched a lot of movies, ate a lot of popsicles and enjoyed having mommy and daddy all to himself. The first four hours he had to lay completely still. A hard assignment for an active 4 year old! He did pretty good. By 5:00 he was able to get up and he started climbing all over the chairs! He enjoyed eating dinner and snacks in bed, along with candy and popsicles. Around 6:30 we moved to the cardiac floor as they had beds available for us. We had to share a room. It wasn't bad except for at night the little girl next to us her alarms went off all night! And with the beds for parents being uncomfortable we got no sleep at all! The little girl never did talk or cry. Maybe a whimper when they were poking and prodding her. I think she was Allie and Kara's age. Trevor got to take some wheelchair rides which he enjoyed. During the night his blood pressure dropped, but it eventually went back to levels they were satisfied with. We took Trevor to the playroom in the morning. He was bouncing, jumping, running... Very excited... all the things he can't do for a month. This will be a very long month! We had to have the nurse explain to him that he has to take it easy so his heart can heal. It looked like the poor little guy was going to cry. He doesn't understand, especially since he feels so good! He did ask last night when the sleepy Dr. was going to come back in so he could go to sleep again! I'm sure I'm missing something and after I get some sleep and I remember it, I will post it for you all to read :) Thank you so much for all the prayers and gifts for Trevor.

Surgery

He went in at 8:38 for surgery. All the staff was calling him a rock star! He went back with the sleep Drs. gave people high fives and pounds when asked and got on the table put the mask on and fell asleep. The surgery itself was a huge success! Dr. Jones said his heart looks excellent! And the ASD closure should work great! For the first time since his open heart surgery is SATS have been in the upper 90's, even 100! Dr. Jones is thinking that Trevor can wait at least 5 years for his pulmonary valve replacement. What wonderful news! He should no longer look blueish/purple when he exercises, or when it is cold outside. That is a look I think I can get use to :) At 10:21 we were paged that he was done and it was a success! The device they put in is called an amplatzer septal occluder. It is 13mm. They also put a tiny camera through his other leg. It is amazing the technology they have nowadays!

Pre-op

Trevor and I went to pre op while Daddy was going home to get his moose. Trevor remembered the way back by following the purple circles to the room. We were in the green room. Lots of Dr.s and nurses came in and checked on us. Trevor kept asking when the sleepy Dr. was coming so he could go to sleep. He was ready to start his sleepover :) He told everyone he was going to sing his ABC's while he was going to sleep. (He never did get to sing them as he fell asleep before he could start :) Before I knew it, it was time for him to go. He was holding onto his blanket and I thought he was going to take it with him. He then tossed it to me and started to walk with the sleepy Drs. I asked him if he wanted his blanket, he responded, "no, my moose will be with me when I wake up so I don't need the blanket." What confidence he has... I had to ask him for a hug and kiss so he came over and let him know I would see him in a couple hours. He acted like he didn't even care. He was excited for the sleepy Dr.!

Whatever you do, DO NOT FORGET THE MOOSE!!

We had our bags packed for the hospital the night before, with the exception of Trevor's favorite moose and blanket. When we woke Trev up yesterday morning we grabbed his blanket and him and headed out the door. We were about 20 minutes away and realized WE FORGOT THE MOOSE!! We decided not to say anything to Trevor as we didn't have time to go back home, or so we thought. We ended up at Children's 40 minutes early as there was no traffic. Hard to believe, I know :) We drove around for awhile before heading into Childrens. We finally decided to head in early as our nerves couldn't take it anymore. Trevor was so excited to spend the night in the hospital! (Trev woke up at 3:30 asking if it was time to leave for the hospital :) We told him no and to go back to sleep and we would wake him when it was time to go.)

We got to check in and the nurse asked us lots of questions and had us sign lots of release forms. Then she looks at Trevor and smiles and asks him if he has a favorite stuffed animal or blanket he is taking with him. He is smiling ear to ear when he looks at me and says "yes". I then had to look him in the eyes and explain that we forgot the moose and mommy and daddy made a mistake and his moose would be waiting at home for him when he was home from the hospital. Instantly he went from happy and excited for his hospital stay to crying and not wanting to listen. The nurse tried to give him another stuffed animal but it was not his moose! He declined all other toys. I took him away from everyone and told him not to worry that either mommy or daddy would go home and get his moose and it would be there when he woke up. He was happy with that idea. So at 7am Scott decided he would go home and get the moose. Trevor's surgery was at 8:30. Scott made it back to the hospital around 9:30. We got the id band on the moose ran him back to the pre op room and told the nurses he needed to get to surgery with Trevor. How did we ever forget his most precious moose?

"This is fun."

Trevor announced the above quote while enjoying popcorn, his ninth popsicle and watching his favorite movie, Toy Story 2. From his perspective, this must seem like having a sleepover. We took a couple wheelchair rides last night and he was feeling great. No pain. He didn't even want help getting down off his bed. "I can do it, Daddy!" He fell asleep around 11pm, so we'll let him sleep as long as he wants.

On deck this morning is rounds, breakfast, ultrasound and an EKG.

June 2, 2010

Amazing...

Trevor is laying down, watching a movie and enjoying a "super big" red popsicle as I type this. The surgery was successful and no complications. He has to remain flat and still for 4 hours. If all heals well, he should be able to sit up and go for a wheelchair ride or two this evening. When I ask him how he feels, he says, "good." He is an amazing little dude. He was so ready for this surgery that he walked back with the surgeon all on his own. We actually had to call out to him to get him to come back and give us a hug.

Get this...his cardiac surgeon's name is Dr. Tom Jones. Trevor doesn't find that as funny as I do. Maybe some day.